Calls from Hulkman

I just got off the phone with Hulkman…again.  That was call num­ber 4 within the last hour. I love my brother dearly, but there are days that I would like to ring his scrawny lit­tle neck.  We have this “thing” where as soon as Mum and Dad leave for errands, he calls me to chat. It helps him feel like he’s grown-up and doing his own thing. I’m really the only per­son he can call so he can get car­ried away at times. Some­times he’ll for­get which speed dial to push and ends up get­ting my home answer­ing machine over and over and over.  So I’ll come home to about 14 mes­sages say­ing either, “Jen, will you call me back?” or “AHHHHHH, MAAAANNNN!!!!! C’ MON, JENNY!!!!!”  I love those last ones.  Cracks me up all day long. Because of his ten­dency to over work the calls, I’ve told him 1 call a day.  But he’s a sneaky lit­tle devil.  He’ll feign sad­ness, excite­ment or anger to eek more calls in.

Today’s one of those days.

But I also find myself hav­ing a hard time get­ting too upset because 1) he’s almost 42 and that’s get­ting up there for peo­ple with Down Syn­drome.  One day I’ll be cry­ing that those phone calls will never be again.  And 2) I think about how he almost died when I was barely 12.

We had moved to India in Octo­ber of 1983.  It was a hard tran­si­tion, for me at least.  My broth­ers seemed to deal with all the strange sounds, smells and sights just fine.  I cried almost every night for the first month we were there.  It was dirty and loud.  There was con­stantly a smell whether it was pun­gent human/animal excre­ments or won­der­ful spices.  You were never alone…too many peo­ple for that lux­ury.  Even­tu­ally I made a cou­ple of friends in the neigh­bor­hood which helped the tran­si­tion.  By Decem­ber I was feel­ing more com­fort­able with my surroundings. 

I was look­ing for­ward to my birth­day com­ing up — Jan­u­ary 18th.  I was going to be a pre-teen! I just knew it was going to be won­der­ful!  Our land­lords (who lived below us) and our neigh­bors were going to make a big deal about it and that’s exactly what I wanted!  I had huge expec­ta­tions that unfor­tu­nately were not going to take place.

The night before my birth­day, Hulk­man went to pee and passed out.  There was blood in his urine and he had spots all over his body.  They took him to the newly built Apollo hos­pi­tal.  There were doc­tors there that were from all over the world. That was such a relief as most hos­pi­tals at the time were very 3rd world­ish.  The say­ing was “Bring your cats to keep away the rats”.  Hulk­man was admit­ted into the ICU ward due to com­pli­ca­tions with bleed­ing ulcers and dengue fever.

On the morn­ing of my birth­day we were taken to the hos­pi­tal to see him.  My other brother and I could only go in one at a time.  When it was my turn, as soon as I walked in, Hulk­man looked at me so weak and pale yet started singing: “Happy Birth­day to you. Happy Birth­day to you. Happy Birth­day, Jenny Pooh. Happy Birth­day to you.”  His voice was so raspy and strained from all the tubes they had put down his throat dur­ing the night.  As sick as he was all he wanted to do was show me that he remem­bered.  I was a wreck.

I don’t remem­ber how long he was kept in the hos­pi­tal.  Some­times it felt like days and other days it felt like weeks.  Dur­ing that time he was los­ing more blood than they could keep in him.  Some won­der­ful Bible School stu­dents heard the hos­pi­tal was run­ning out of his type of blood so they came in a group and gave blood to Hulk­man.  Unfor­tu­nately that still wasn’t enough, because then his intestines blew.  The doc­tors told my par­ents that Hulk­man had about 3 days left to live so we needed to say our good­byes. We were dev­as­tated. I remem­ber think­ing, “Why would God bring us to India just so we could lose Hulk­man?! What kind of God is that?”

Dur­ing all this time, we had thou­sands and thou­sands of peo­ple pray­ing for Hulk­man, but hear­ing this lat­est news, our land­lords decided to step it up.  With 2 days left, they came to the hos­pi­tal, anointed Hulkman’s head with oil, sang a song or two, and read a very touch­ing prayer.  Hon­estly, I didn’t think much of it.  But appar­ently God thought oth­er­wise.  By that after­noon the bleed­ing had stopped and Hulk­man was sit­ting up in bed ask­ing for mashed pota­toes.  He was hun­gry!!  The doc­tors were stunned.  Since he wasn’t bleed­ing any­more they decided to run a scope down to his stom­ach to see what had hap­pened.  What they found was even more stun­ning.  There wasn’t even scar tissue. 

I’ll never under­stand God’s ways, but one thing I have learned is to trust Him. His ways are might­ier than ours.

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13 Responses to “Calls from Hulkman”

  1. Chad says:

    Very inspir­ing story. I’m sit­ting hear teared up as I type this. God is amazing.

  2. Cupcake says:

    What a won­der­ful story!! God truly works in mys­te­ri­ous ways..

  3. Debbie says:

    I can’t believe I have never heard that story before! I know you can pic­ture me with tears rolling down my face right now…you know how sappy I am!! Truly a mir­a­cle and why he calls you sev­eral times a day!! Trea­sure each call!!

  4. Misty Dawn says:

    Oh my gosh Jen/Gi — what a story! I’ve got goose­bumps and there are tears on my cheeks.

    By the way — remem­ber my telling you of my cousin with Downs, whom I grew up with? He’s 62 years old!!! I don’t know if it’s rel­a­tive or not, but his dad (my great-uncle) is 95 years old!

    By the way — I’m baaaaaaaaack and I’ve missed ya!
    (and your blog looks freak­ing fantastic!)

  5. Cheri says:

    This touches a very raw nerve in me that I can’t talk about. Thank you for putting it in words so elo­quently. And for being so trans­par­ent and open about your strug­gles. Not found eas­ily in the Chris­t­ian com­mu­nity, but needed so badly.

  6. Amy Shipp says:

    Wow! What an awe­some story! I love it. Com­bined faith and prayer can always pro­duce mir­a­cles ♥ xoxo

  7. Stacey says:

    JenGi we have a big God, don’t we? Hulk­man is almost as for­tu­nate to have you as you are him. I can almost hear the mes­sages, you described them so well I’m crack­ing up! I have a friend whose brother has Down’s Syn­drome and on Fri­day nights when we’re there for small group, he always calls. And calls. And calls…until her hus­band finally answers and lov­ingly tells him she’ll call back after group, so be patient. And he usu­ally lis­tens to him–but I think it’s adorable. xoxo

  8. c i n a says:

    I’m not sure I’ll ever meet such a bless­ing as Trent, as long as I live.

  9. kristin says:

    Okay, so here is my full fea­ture com­ment! AWESOME story. Thanks for shar­ing that. It was very beau­ti­fully writ­ten too. I have met Trent a time or two, but hav­ing a sis­ter with downs I com­pletely under­stand your feel­ings of both frus­tra­tion and absolute love all at the same time. Jenni will call and leave me mes­sages on my cell phone about all kinds of things. Like one night I invited her over for din­ner because mom and dad were out of town and wouldn’t be back until really late that night. Jenni loves being by her­self and can only han­dle peo­ple for a cer­tain amount of time. So, she stays home a lot by her­self. Any­way, that night she called while I was busy with the baby and left this mes­sage, “Sis­ter (she always calls me Sis­ter instead of Kristin), this is your sis­ter, Jenni. Your sis­ter Jenni, it’s me. Mom and Dad called and are com­ing home early. They are com­ing home early. I won’t be com­ing over for din­ner because mom and dad are com­ing home early. I’m sorry but I can’t come over tonight. Mom and dad com­ing home early. Maybe next time, I’m sorry I can’t come over Mom and Dad are com­ing home early, okay? Okay, Love you, your sis­ter Jenni.”

    I laugh and laugh about those mes­sages!! What we would ever do with­out them! We’d never really know how to love and laugh as hard as we do, right!

  10. Cindy Stahl Gullion says:

    Why hadn’t I heard this story before? Thank you for sharing.….I have some fond mem­o­ries of “hulk­man” too. I love you and your fam­ily and think of you often! Again.….thank you for shar­ing this story!!

  11. D... says:

    Wow, Jen. I have chills. What a story. God is a mighty God, to be sure!

    Hulk­man sounds like an amaz­ing brother. I am sure you bless him as much as he blesses you.

  12. Bubba's Sis says:

    Wow. Just wow. Hulk­man is a bless­ing, indeed!

  13. ds.mama says:

    Thank you so much for shar­ing your brother with us! Maybe you could do a blog all about Hulk­man so that I can add you to the DSNM “The Future is Now” blogroll. There just isn’t enough blog­ging about adults with Ds to go round!

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